No drugs for 300 hemophilia patients at SMHS
There are no drugs for around 300 hemophilia patients including children at SMHS hospital here due to which they are facing life threat and risk of contracting deadly diseases.
President of Hemophilia Society of Kashmir, Syed Majid Qadri said hemophilia patients were without anti-hemophilia drugs like factor VII and IX, feiba, and wanvilibrand factor (VWF).
“Government Medical College Srinagar has not been able to procure these drugs for the needy patients despite obtaining no-objection certificate (NOC) from Jammu and Kashmir Medical Supplies Corporation. The authorities are playing with the precious lives of patients,” he said.
Qadri said due lack of anti-hemophilia drugs, the patients are given FFP which has developed multiple ailments, infections and deformities among the patients, putting their lives at risk.
As per him, the doctors posted at Hemophilia Day Care Centre of SMHS Hospital, a lone tertiary-care facility in Kashmir, have no specialization to tackle the problems of hemophilia patients.
“They are violating the guidelines of World Federation of Hemophilia (WFH) as patients are provided less dosage than the recommended norms,” he said.
Qadri said inappropriate treatment, imbalanced dosage, inefficient prescription and unnecessary referral of patients, to other units was a clear violation of WFH guidelines.
He complained that the Day Care Centre building had been converted into a store, leaving hardly any space for treatment of hemophilia patients.
“The laboratory has been occupied, making hardly any space for the required machinery, which results in improper analysis as the machine shows error, thus creating problems for treating patients,” Qadri said.
He said the physiotherapy equipment at the centre had developed rust in boxes due to non-availability of space.
The patients appealed the Government Medical College Srinagar authorities to take cognizance of the matter stating that otherwise they would be forced to hit the streets.
Interestingly, in 2011, the High Court directed the health department to keep the factor available round the clock in the hospital.
But, as per the patients, the hospital administration in complete disregard to the court directions never keeps anti-hemophilia factor unavailable.
“Authorities at the helm of affairs are not able to work out the demand for anti-hemophilic drugs but have created a mess concerning the drafting of demand of the medicines on the pretext of availability of funds,” Qadri said.
He said they had been appealing the authorities but were not serious about the matter.
Medical Superintendent SMHS Hospital, Dr Nazir H Chowdhary said the patients had not taken up the matter with him.
“They will be taken care of. They have not come to me. We will provide them medicines,” he said.
A per doctors, the incidence of hemophilia in Jammu and Kashmir is one per 10,000.
“There are 290 registered patients (276 males and 14 females) with the centre; a lone facility for such patients but it continues to face official apathy,” a doctor said.